So after all the tests and cultures they've decided Castian cannot wait any longer for his AVSD and PDA repair and my wish for Christmas is being granted. Castian will have his repair on Christmas eve. I am thrilled but terrified at the same time... Thrilled that he finally gets it done and he'll be able to be at home longer than the hospital and he'll be healthy. He is 14 weeks and he's only been home for 4 of those.
I'm terrified because I don't want to be a person who loses a loved one at Christmas, there is a memory tree here at the hospital, it's very difficult for me to even walk by it much less look at it. As one mother here told me .... I am almost convinced he won't make it! Is that normal?
His swab is still positive but he shows no sign of being sick. At this point the risks of waiting outwiegh the risk if doing it asap.
On a side note my support for financial assistance was approved yesterday. Our lodging, mileage and food will be covered for our trip to Edmonton... Which is one less expense.
God works in mysterious ways.... Awfully funny how everything FINALLY comes together at the same time!
I'm terrified because I don't want to be a person who loses a loved one at Christmas, there is a memory tree here at the hospital, it's very difficult for me to even walk by it much less look at it. As one mother here told me .... I am almost convinced he won't make it! Is that normal?
His swab is still positive but he shows no sign of being sick. At this point the risks of waiting outwiegh the risk if doing it asap.
On a side note my support for financial assistance was approved yesterday. Our lodging, mileage and food will be covered for our trip to Edmonton... Which is one less expense.
God works in mysterious ways.... Awfully funny how everything FINALLY comes together at the same time!
I understand the mixed emotions. But I'm so glad to hear that Cas has been cleared for surgery. Do you leave Tuesday? I'm sending something to you at the RMH.
ReplyDeleteI'm so glad your FSCD contract was approved and that you don't have to worry about that. I will be thinking about you and praying for you on Christmas Eve.
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